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Stories FAQ Contact search MenuOur Story Annual Report For Hope (1996 Film) Board of Directors Staff Scientific Advisory Board Our Donors FAQ Living with Scleroderma What Is Scleroderma? About Our Research Program Patient Forum Participate In Research CONQUER Registry Clinical Trials CONQUEST Resources I’ve Been Diagnosed. What Do I Do Now? Complications and Treatments Treatment Centers Webinars Watch: Behind the Mystery Glossary of Terms Our Research About Our Research Program Science Workshop GRASP Project CONQUER Registry CONQUEST About CONQUEST Patient Impact The CONQUEST Steering Committee CONQUEST FAQ CONQUEST in the News Funded Projects Current Investigators Apply for a Grant The Spotlight Series Cool Comedy • Hot Cuisine Cool Comedy • Hot Cuisine 2023 About CCHC Last Year’s CCHC CCHC Gallery Support Us Donate Honoring Bob Saget Volunteer with The Cure Crew Ways to Give Wire Transfer or Stock Gifts Tribute or Memorial Gifts Bequest Gifts Beneficiary Designation IRA Distribution Employer Matching Gifts Workplace Payroll Deduction Corporate Giving Online Fundraisers Donor Advised Fund Cryptocurrency Give with Bing #SayScleroderma DONATE searchJoin us on June 3, 2024 for a FREE, virtual event for those living with scleroderma and their loved ones Learn More Register Now Autoimmune Diseases Affect More Women than Men—New Research Sheds Light on Why SRF-funded researcher Dr. Howard Chang and his collaborators have made a breakthrough discovery Read the New York Times Article Introducing Dr. Gregory Gordon as the SRF’s First Chief Medical Officer Learn More We are in business to go out of business.” Learn About the Scleroderma Research Foundation Mission People living with scleroderma can help us find a cure. Participate In Research 1 1 Join us on June 3, 2024 for a FREE, virtual event for those living with scleroderma and their loved ones Learn More Register Now Autoimmune Diseases Affect More Women than Men—New Research Sheds Light on Why SRF-funded researcher Dr. Howard Chang and his collaborators have made a breakthrough discovery Read the New York Times Article Introducing Dr. Gregory Gordon as the SRF’s First Chief Medical Officer Learn More We are in business to go out of business.” Learn About the Scleroderma Research Foundation Mission People living with scleroderma can help us find a cure. Participate In Research Participate in Scleroderma Research You can help advance research for a cure for scleroderma by participating in studies. Learn More Meet the Scientific Advisory Board All of SRF’s research is led by our world-class Scientific Advisory Board. Meet the Board Get Involved Join the Cure Crew and help make a difference by raising awareness and getting us closer to a cure for scleroderma. Join Now The Scleroderma Research Foundation Mission The mission of the Scleroderma Research Foundation (SRF) is to fund and facilitate the most promising, highest quality research aimed at improved therapies and, ultimately, a cure for scleroderma. Learn More About Our Story What We Do at the SRF The Scleroderma Research Foundation is the United States’ leading 501(c)3 nonprofit investor in scleroderma research and is laser-focused on finding a cure for scleroderma, a rare and deadly disease. Led by the most distinguished scientific minds, the SRF research program seeks to understand scleroderma by facilitating collaboration among the world’s top scientists and medical institutions. We strive to increase awareness and knowledge of scleroderma among those living with scleroderma, the medical community, and the general public. As an innovator in scleroderma research, the SRF is uniquely qualified to provide those living with scleroderma, the medical community, and the general public with the most up-to-date and relevant news and information about complications, treatments, and related research. Learn More About the SRF Living with Scleroderma Our ultimate goal is to find a cure for scleroderma. Until that happens the SRF will raise awareness and provide education for people and their loved ones who are living with scleroderma. About Scleroderma Scleroderma is a complicated disease that often goes unrecognized, misdiagnosed, and untreated. Learn More About Scleroderma Participate in Scleroderma Research Research is the best hope for finding a cure for scleroderma. You can help by participating in research studies. Learn How You Can Participate Join the Cure Crew Help us do more to find a cure for scleroderma by raising funds and awareness. Join Cure Crew Learn More About Living With Scleroderma » Kheesa’s Story Kheesa’s symptoms started in 2005, but she wasn’t diagnosed with scleroderma for two years—until after the birth of her first child. Read more about her motivation for fighting scleroderma and why research is important to her. Read Kheesa’s Story Scleroderma Statistics 4 out of 5 Patients are women 30–50 Average age of onset 80% of SRF’s annual budget devoted to research SRF Research All of the SRF’s funded research is focused on finding better treatments and ultimately a cure for scleroderma. Dive deeper into the details of our medical research efforts. SRF Research Program The SRF’s research program actively seeks out and recruits clinical and scientific experts to join the scleroderma research community. Learn More Science Workshop The SRF annual Science Workshop brings together our Scientific Advisors, funded researchers, applicants, and outside industry partners for intensive evaluation, discussion, brainstorming, and collaboration. Learn More Current Funded Projects SRF research projects are on the leading edge of scleroderma research. Learn More Learn More About All Our Scleroderma Research » OUR SIGNATURE EVENT Cool Comedy Hot Cuisine, a tribute to Bob Saget The SRF’s signature event, Cool Comedy • Hot Cuisine, took place November 8th in NY as a tribute to Bob—raising more than $1.2 Million for scleroderma research. Learn More SUPPORT THE SRF Help Advance Our Scleroderma Research The Scleroderma Research Foundation funds research aimed at understanding the pathogenesis of scleroderma and promoting the design, development, and pilot-testing of hypothesis-driven, innovative, therapeutic approaches. Learn MoreOur Story Annual Report Board of Directors Staff Scientific Advisory Board Our Donors FAQ Contact Join Our Mailing List Living With Scleroderma About Scleroderma About Our Research Program Patient Forum Participate In Research Resources Watch: Behind the Mystery Glossary of Terms Our Research About Our Research Program Science Workshop GRASP CONQUER CONQUEST Funded Projects Current Investigators Apply for a Grant Cool Comedy • Hot Cuisine Event Hub Cool Comedy • Hot Cuisine About CCHC CCHC Gallery Support Us Donate Ways to Give Cure Crew #SayScleroderma Privacy Policy Social Media Code of Conduct © 2024 Scleroderma Research Foundation. All Rights Reserved. The Scleroderma Research Foundation is a 501(c)3 non profit organization (Tax ID #68-0087234). twitter facebook linkedin youtube instagram tiktok Our Story Annual Report For Hope (1996 Film) Board of Directors Staff Scientific Advisory Board Our Donors FAQ Living with Scleroderma What Is Scleroderma? About Our Research Program Patient Forum Participate In Research CONQUER Registry Clinical Trials CONQUEST Resources I’ve Been Diagnosed. What Do I Do Now? Complications and Treatments Treatment Centers Webinars Watch: Behind the Mystery Glossary of Terms Our Research About Our Research Program Science Workshop GRASP Project CONQUER Registry CONQUEST About CONQUEST Patient Impact The CONQUEST Steering Committee CONQUEST FAQ CONQUEST in the News Funded Projects Current Investigators Apply for a Grant The Spotlight Series Cool Comedy • Hot Cuisine Cool Comedy • Hot Cuisine 2023 About CCHC Last Year’s CCHC CCHC Gallery Support Us Donate Honoring Bob Saget Volunteer with The Cure Crew Ways to Give Wire Transfer or Stock Gifts Tribute or Memorial Gifts Bequest Gifts Beneficiary Designation...